How to Find Objective, Credible Information on Treatments for Multiple Sclerosis
Whether you are newly diagnosed or have lived with MS for a long time, it is important for you to have access to reliable information about treatment options. Your most important resource for this information is your healthcare provider. You may want more information than your provider has had the time or resources to provide you. Fortunately, there are a number of highly credible sources for you to obtain this information. So too there are endless on-line sources that are not credible.
Patients write about their personal experiences with medications on the site Patients Like Me. Your healthcare provider can help you to understand why you may or may not have similar experiences to those on the site.
The Multiple Sclerosis Emerging Therapies Collaborative has been organized to provide timely, evidence-based resources regarding the known benefits and risks of newly emerging, FDA-approved medications for multiple sclerosis (MS). The Collaborative's goal is to promote optimal, individualized MS treatment by facilitating effective communication and medical decision making for persons affected by MS and health care professionals. This group, which includes the MS Coalition, the American Academy of Neurology, and the Multiple Sclerosis VA Centers of Excellence East and West, will post information and resources for each of the therapies as they gain FDA approval.
Finally, every year, healthcare providers gather to exchange information about every aspect of the care of people with MS. If you are unable to personally attend these meetings, you can access summaries of these conferences on the MSAA's and NMSS's website. These links provide information about the Consortium of MS Centers (CMSC) annual meeting in June, 2013.