The American Academy of Neurology (AAN) is the professional organization for those involved in the care of patients with neurologic conditions, including MS. The Academy has developed a website for people affected by neurologic disorders that is aimed at increasing understanding of neurologic diseases, including their causes and available treatments. To access this information visit the AAN's patient website, or MS specific information page. In addition, you can sign up to receive a free copy of the AAN's magazine for patients and caregivers called Neurology Now.
Can Do Multiple Sclerosis provides innovative lifestyle empowerment programs for people with MS and their support partners. Leveraging the powerful legacy and principles of former Olympian and organizational founder Jimmie Heuga, Can Do MS has helped thousands of people living with MS reclaim a sense of dignity, control and freedom by empowering them with the knowledge, skills, tools and confidence to transform challenges into possibilities.
By focusing on what you can do, individualized and experiential programs provide a whole new way of thinking about and living with MS. For information about upcoming programs, visit the Can Do MS website or call 970-926-1290 or 800-367-3101.
The mission of CHUMS is to give children, whose lives are affected by MS, the hope, resources, knowledge, support, and skills to effectively cope with multiple sclerosis as a component of their life.
One of the most effective ways of learning is through engaged participation. CHUMS created a series of simulations for some of the most common symptoms of MS. Through fun, educational activities, the children gain a fundamental understanding of how MS affects the body physiologically. By participating in the symptom simulations, children quickly learn the physical discomfort MS can cause as well as the frustration of how everyday actions (like tying your shoes or turning a page in a book) can become extremely challenging. They learn that people can and do have different symptoms, in different combinations which affect them to varying extents. And they come to understand how some symptoms can cause ancillary ailments like headaches, dizziness, or fatigue.
In addition to understanding what happens to the body when someone has MS, what some of the most common symptoms of MS might feel like, and how individualized and unfair MS can be, you can literally see something else developing in the kids and rising to the surface. EMPATHY. For information about upcoming events visit CHUMS webiste.
The Multiple Sclerosis Emerging Therapies Collaborative – which includes the MS Coalition, the American Academy of Neurology, and the VA Multiple Sclerosis Centers of Excellence East and West – is committed to developing and disseminating timely, evidence-based resources to persons affected by multiple sclerosis and health care professionals, in order to promote optimal, individualized treatment of the disease by facilitating effective communication and medical decision-making. Launched in 2011, the Collaborative has as its priority to provide information on MS-specific, US Food and Drug Administration (FDA)-approved treatments that have entered the market since 2010. Previously-approved medications will be reviewed in the event of new safety or efficacy data that significantly affect their use in MS treatment.
Essential Elements was developed by the Consortium of MS Centers. The Essential Elements tool kit enables people who are newlybdiagnosed or recently affected by MS to learn about the disease with a focuson wellness and knowledge. Earth, Wind, Water, and Fire are essential elements of life. Once MS enters the picture, MS must become an essential element of living rather than a "career". This resource provides the reader with an opportunity to learn and integrate a new way of living and coping with chronic illness. To access this tool, click on the following link: Essential Elements-My Personal Portal.
The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization and leading resource for the entire MS community, improving lives today through vital services and support. MSAA provides free programs and services, such as: a Helpline; award-winning publications and educational videos; a mobile phone app, My MS Manager™; a resource database, My MS Resource Locator; equipment distribution; cooling accessories for heat-sensitive individuals; educational events; MRI funding; and more. For additional information, please visit www.mymsaa.org or call (800) 532-7667
MSWorld.org was founded and is managed & operated by volunteers-all living with MS. We have provided online support and information to more than 90,000 people worldwide living with MS and have been a collaborative partner with the NMSS since 2001. MSWorld, where "Wellness is a State of Mind®."
National Multiple Sclerosis Society (NMSS), through their home office and 50 state network of chapters, helps people with MS and their families move their lives forward by funding research, driving change through advocacy, facilitating education and providing programs and services. Please visit www.nationalmssociety.org or connect with a Society MS Navigator by calling toll-free 1-800-344-4867. MS Navigators are skilled professionals equipped to respond to your needs. Whether you are a person living with MS, a friend or family member, the National MS Society can help connect you to the information and resources you need.
National Multiple Sclerosis Society (NMSS), through their 50 state network of chapters, helps people with MS and their families move their lives forward by funding research, driving change through advocacy, facilitating education and providing programs and services. Please visit the National MS Society website or connect with an MS Navigator by calling toll-free 1-800-344-4867. MS Navigators are skilled professionals equipped to respond to your needs. Whether you are a person living with MS, a friend or family member, the National MS Society is your partner in helping you find information and resources you need.
Neurology Now® magazine Compelling stories and useful tips for patients and their families. This free, award-winning magazine features advances in the diagnosis and treatment of brain diseases as well as expert advice on wellness and disease prevention, new medications and therapies, and strategies for coping effectively with brain disease. Subscribe today!
The Well Spouse Association is an international non-profit, volunteer-based organization whose mission is to provide emotional support to, raise consciousness about, and advocate for the spouses/partners of the chronically ill and/or disabled. The organization can be contacted at Tel: 800-838-0879 732-577-8899 or email@example.com.
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